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Are we ready for them? “Autistic Young Adults”

Are we ready for them? “Autistic Young Adults”

Picture of Dunia Elvir

Participating in the California Endowment Health Journalism Fellowship is not only an honor; it’s also a great opportunity to bring answers to many questions puzzling thousands of parents of autistic young adults.  

A high percentage of young adults with autism will experience difficulties and their conditions may even regress. Thousands of Latinos are part of the generation of young adults who were born during the first big wave of autism cases in the United States. The lack of information, language barriers and the limited resources in Spanish for their parents make these young Latinos with autism more prone to difficulties in the transitions into adulthood and independency. 

I experience these difficulties on a daily basis. Jesus, my 20-year-old son is still struggling finding a job and a proper placement to continue with his education. Recent studies talk about the expert’s concerns about the underserved autistic young adult.

"A majority of our adults are underserved or not served at all. They can't access the same services as adults that they had as children," said Jim Ball, board chairman of the Autism Society, a national advocacy group. "We are doing a lot for our kids, but these kids are going to live to 80 or 90 years old - they're going to live the majority of their lives as adults. What are we doing for them in that realm?"

Through a team project for television and the web, both English and Spanish; NBCLatino.com Norma Rubio and I hope to find ways to support and inform Latino families who struggle with the transition of their autistic young adult into adulthood and independency.

Comments

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como me gustaria q en mi pais hubieran programos que ayudaran a jovenes que padesen esta condicion,en centrto america no hay programas en las escuelas para poder ayudar a estos jovenes q tienen esta condicion,simplemente los aislan sin saber que son personas q tienen una capicidad increible.

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Felicidades,excelente información

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Felicidades por la información

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Much food for thought. Du, you share the personal experience of a parent dealing with the constant struggle. My wife has been in Special Education for 25+ years. She teaches 16 -21 year olds vocational skilles....everything from maintaining an apartment, to writing a check, to finding employment. Over the years, thank God there have been a number of employers who have committed to helping. Well written and good luck with Jesus! Jim from Chicago (FB)

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My son is 18 and this subject must be talked about thank You so much Dunia for your tireless efforts xoxo :))

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THANK YOU Dunia and Norma. I see the growing discrimination based on socioeconomic status, Geographic location, ethnicity, Age, even Gender when it comes to Autism. We have multiple projects and initiatives exploring these issues. I would love to partner and assist your project any way I can. TannersDad Tim Welsh ASD Advocate AutismAid TeamAFB

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Great work! Beautiful Boy ..hugs.

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Hi,
We are currently developing a campus style "pocket neighborhood" for adults with autism on Cape Cod, Ma. Cape Cod Village will provide four houses to accommodate a total of 16 people. We are two years into the project and hope for completion in 2015. This is a huge undertaking that has been parent driven. Website. capecodvillage.org

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http://www.youtube.com/watch?v=ybiFEVTzGBU. Abuse of autistic adults rooted in inability of state to comprehend the type of caregivers needed to deal with complex issues in autism, as a result bad caregivers are left dealing with autistic patients. States have failed to train and identify people who don't have criminal backgrounds. This nurse in video was on the independent nurse vendor list for San DIego Regional Center, but this regional center didn't do a background check.

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