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Why do Black women get more hysterectomies in the South?

Why do Black women get more hysterectomies in the South?

Picture of Amy Yurkanin
(Photo via Amy Yurkanin)
(Photo via Amy Yurkanin)

Hysterectomies are the second most common surgical procedure for women after cesarean sections, and although they can be lifesaving for women with cancer, they are usually performed for conditions that are painful but not deadly.

Researchers have developed less invasive treatments that work for most women suffering from fibroids and other gynecological conditions, but many patients don’t have access. A deep divide has emerged, with some studies showing that Black women receive hysterectomies at rates that are three times higher than whites.

That disparity is even greater in the South. Up to 90% of hysterectomies among Black patients at rural hospitals occur in the region.

The consequences of unnecessary hysterectomies can be huge. Total abdominal hysterectomy is major surgery that causes complications in about 10% of patients. Removal of the uterus has been linked to poorer cardiac health, even among women who keep their ovaries. Younger women have the highest risks of long-term health problems after hysterectomy. Some of them also grieve the loss of their ability to bear children.

Last year, officials with the Medical Association of the State of Alabama unveiled a statue honoring the Mothers of Gynecology, enslaved women who became the subjects of brutal medical experiments carried out by Dr. J. Marion Sims. The statue represents the beginning of an effort to acknowledge the historical toll of racism on women’s health care.

However, racial differences in care still exist in Alabama and across the South. Not only are Black women more likely to receive hysterectomies overall, they are also more likely to get total abdominal surgery instead of minimally invasive surgery with lower rates of complications and quicker recovery times.

In a report from Human Rights Watch, some women in Alabama’s Black Belt, a rural region named for its dark soil that also has many Black residents, reported they had hysterectomies for unknown reasons. A gynecologist working in the area alleged that some doctors train on women in rural Alabama to gain experience before moving elsewhere.

“Doctors use hysterectomies as a form of birth control,” one woman said. “They take your uterus; they take your cervix and then they don’t have to bother with you anymore.”

Forced sterilizations of Black women in Alabama occurred as recently as 1973, when attorneys from the Southern Poverty Law Center represented the Relf sisters of Montgomery. Echoes of that history of eugenics remain in the Black Belt, which also suffers from a shortage of gynecologists and other medical providers.

The Black Belt is one of the most medically underserved places in the country. Many counties don’t have hospitals or gynecologists. Most women travel to Selma, Montgomery or Tuscaloosa for gynecological care. Rates of cervical cancer and maternal mortality are also high in Alabama, with deep differences between white and Black women.

In 2020, Alabama hospitals performed 6,619 total abdominal hysterectomies, according to a report by the Alabama Department of Public Health. The state keeps some data on total abdominal hysterectomies that are required for federal monitoring of health care-associated infections. I hope to compare those numbers with rates of alternative procedures.

Health care discharge data can be difficult to obtain in Alabama, but there is information available from the Alabama Medicaid Agency and the State Health Planning and Development Agency. Blue Cross Blue Shield of Alabama, which covers almost 90% of people with private insurance in the state, will sometimes share its data with reporters.

As part of my reporting for a new project supported by the Center for Health Journalism’ Impact Fund for Reporting on Health Equity and Health Systems, I would like to obtain statistics about hysterectomies and alternative procedures broken down by race. Then I can use that data to pinpoint areas with the largest disparities in women’s health care and talk to women about their experiences with surgery. If the data is not broken down by race, I can compare the regions with higher percentages of Black residents to those with lower numbers.

There are also physicians in the state working hard to raise awareness of alternatives to hysterectomies, especially in underserved areas. But awareness is just one part of the puzzle. Women with uterine pain must also have access to insurance coverage or savings to pay for procedures, along with transportation to larger hospitals. 

Alabama has not expanded Medicaid and has some of the lowest eligibility rates in the nation, so it’s not clear how often the program pays for hysterectomies. The state maintains a bare bones health safety net that may cause some women to put off care until their condition requires more radical treatment.

It will be difficult to tease out all the factors that cause higher rates of hysterectomy among Black women. It’s a good time to start a conversation that could lead to better care for Alabama women. Building a statue will help raise awareness of the history of racism in the medical field, but I hope that these stories will help improve the inferior care so many Black women still receive in the South.

Comments

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I live in mobile Alabama and I had a total hysterectomy. I ask for an alternative way to help my pelvic pain but a hysterectomy was my doctor only recommendation. My experience was traumatizing. My main concern that I stressed to my doctor to go into my abdominal at palmer point for safe reasons from a previous obgyn advice due to endometriosis I developed form 2 cesarean. My doctor didn't listen to me and what I wanted for my body.

In July of 2020 I had Liposcopic total hysterectomy and after I woke up in recovery. The first thing I said was I was in horrible pain. They ignored me left me in the dark room and I cried out for some relief. It felt like my inside was scrap and burning on fire. I cried the whole night for help. The next morning my doctor rushed me out for discharge and I told her I didn't feel well she ignored me and I went home. Later that night my husband made dinner, I ate and immediately started throwing up. We rush back to the emergency room. And pain started coming really bad. I had to wait a long time and when a doctor came in he was horrible. He blamed me for making my heart rate jump into a tachycardia. He pressed on my stomach and I naturally moved it and he fussed at me with no respect of being a soft woman. After they did an exray they found several holes in my colons and I had to under go another major emergency surgery. I woke up the next day with tube down my mouth and long incision down my stomach. They had to remove 10% of my colons.

I had a hard time recovering while in there care. I slip in a mental depression and they didn't help me. I laid in my recovery room for a week and a half in silence in a mental prison I didn't have any Intrest in turning the TV on. I just laid there and no one help me snap back.
When I was able to walk I didn't have the willingness or the offers to assist me in helping me take care of my self. I will never forget how my doctor giggles in telling my husband on the phone that I could handle pain to well. I will never forget how my doctor came into the room after colon surgery and told me she give me permission to be mad. It was like a ritual chanting of what she give me permission to be. And still to this day I don't know what she meant by she is pro life. The effects that I have on my body from both surgery are hard to deal with. My bowel movement are watery I have to go to get fluid from an IV hydration bar at times and my sexual sensation it numb. And to add I had to get an blood transfusion while recovering from the colon surgery to reboot my immune system to fight off the infection they could get rid of. They didn't offer it to my while I was weak they only offered it to me because my insurance was not going to pay for extended days and they had to find a way to get me to a point of safety for the hospital legal stand point. They didn't want to pay for there mishap they charge everything they did to my insurance.

So it really doesn't matter if you have insurance or not the treatment is the same. They made me feel less than a woman. Traumatizing and I summarize it all up scared and fearful lives in me

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